Devin with his dad
Devin was late to turn over, crawl, walk, and talk but otherwise a happy, and generally, healthy baby. Looking back, Devin’s difficulties started with an unforeseen trauma at birth and has since led to developmental delays for all of his growth benchmarks. The extremely rare form of Moyamoya disease that debilitates this twelve year boy requires endless doctors appointments, special schooling, and an unpredictable future for an otherwise spirited child.
Devin’s immediate family, residents of Lake Mary, Florida, have never asked for financial help to cover these costs and, thus, were shocked that his aunts had independently discovered ‘a unique way to raise money’ – Rally.org. Learning that it was the same company that internet entrepreneur, Kevin Rose, recently invested in for Google Venture, they eagerly set up a site. For their initial messaging, they purposefully used Twitter and reach out to @rally and @kevinrose. When Kevin quickly responded with a donation and personal note they saw an influx of additional donations – small and large – and knew they’d picked the right fundraising platform for Devin’s Drive.
The cause’s goal is to financially help this courageous family as their son battles this neurological disease. What Devin’s Drive has achieved is far greater. Upon visiting Devin’s Rally Page, you will find a fundraising page brimming with support and well-wishes for Devin, and reciprocally, up-to-date posts about his progress — the highs and lows of a trooper who doesn’t take life for granted. The family reaches out to inform donors as much — and as often — as donors are touched by this heartwarming story of boy who has never given up, and a parents that haven’t asked for a single penny.
Dr. Scott, the top doctor in Moyamoya disease, hasn’t seen a case quite like Devin’s, and because of its uniqueness, no one has any idea of how it will progress. However, the people that support Devin can still make a difference during this entire experience for Devine and his family.
Visit rally.org/devinsdrive to donate, hear from Devin’s family, and to wish him well.